Quick update from Texas

Hey everyone

I didn’t have time before I left to post the plans and I haven’t had enough time here for all of the details, but I’m down here in Texas for the month of September to help my parents with house repairs and medical/legal stuff (Dad was diagnosed with early-onset Alzheimer’s last year).

First, I want to apologize to the folks who had posted comments to the “Pink Ribbons” post who didn’t see their comments show up for quite awhile. Computer problems, travel, and Texas insanity kept me away from the site & the comment approval panel. I’ll be responding to you guys later (hopefully tonight) and sending emails to the late approvals too.

Also, quick apology to the people who had commented before those folks and I still haven’t responded too – I think that was right about when the computer problems started. It’s been a wild couple of months in Moondoggieland.

Last thing – I’m in West Texas, but do have relatives in the Houston area who we’re keeping an ear out for. They have voicemails, texts and emails waiting for them whenever they can access stuff, so now they have a blog post too. Jaz, Sydney, Chase, David and everyone else – we’re hoping you’re all safe and sending our love, both from Odessa & Connecticut.

We’re watching the hurricane coverage on DirecTV’s apparently ultra-PC channel 361 and wondering what the difference is between “scavenging” and “looting.” I have two theories. 1) If someone has something that doesn’t belong to them and is running from the cameras, they’re looters. If they’re walking, they’re scavengers. 2) Looters steal things from buildings, scavengers steal things from rubble.

This just in – got a text from Jaz – they had a tree crash through their backyard and lost power around 6AM, but are all okay.

Frickin’ Pink Ribbons…

Okay, before I start ranting, there are a few things to state up front.

  1. I love and support all of our cancer family. While I have a special fondness for Hodgers, I love all the rest equally and want to see all forms of cancer get wiped off the face of the earth.
  2. I know breast cancer affects tons of women and that it has touched just about everyone in some way, directly or indirectly.
  3. I have nothing against women (and men) with breast cancer. I love you folks just as much as the rest of my cancer family and hope we get a cure for you soon.
  4. If you have breast cancer, had breast cancer, or love someone who has/had it, you might want to stop reading right now.

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Phase One… Complete?

Well, even though the site doesn’t look much different, I got some good behind-the-scenes updating done yesterday. I would have done a little bit more, but I had to drop everything so we could go see Jake Johannsen at the Hartford Funny Bone in, you guessed it, Manchester.

I don’t get it either.

To make things even more interesting, the club is in a mall. Right next to a Panera Bread and a soon-to-be-opened Bertucci’s. Will the weirdness never cease?

So I’m lying on the couch, sweating and typing, and Barb’s cell rings. barb didn’t get there in time, so had to wait for the voicemail. It’s her best friend Mary, wondering if we’d like to meet her and Craig (her husband, if you’ve just joined us) in Manchester to see Jake at 7:30. Would we? Would we? (Harelip! Harelip!)

Shortly after, either Mary calls the home phone or Barb called her back (the heat makes things fuzzy) (that’s what she said). Come to find out, we’re going to meet them at Pepe’s beforehand for pizza. We need to meet them there at 5:30. Sounds great, yes?

Did I mention it was 4:45? Or that Barb and I both needed to get showered and cleaned up? How about that Google says the mall is 41 minutes away?

We cleaned up in record time, got Phoebe fed and put her in my office (where the air conditioning is), raced out to my car, charged up the flux capacitor and made it there a mere ten minutes late. Which, now that I type it out, doesn’t seem nearly as impressive as it felt. Did I also mention that my “low fuel” light came on halfway there? That might have added to the excitement.

So we made it there in possibly record time (considering all the drafting and coasting I had to do), had some great pizza, and watched some great comedy. The MC was great, the first guy (Tom? Sorry – if I don’t take notes, I’m useless) was awesome and Jake was possibly even more funny than he usually is. Still seems weird to see him without the curly hair, though.

The MC’s last name was “Crohn” so he made a couple of Crohn’s Disease jokes, which made Craig feel good, since he has it. In his words, “Hey, this means at least someone knows what it is now!” Yep, they’re hittin’ the big time. When we left the club, I was tempted to pull the MC aside and confront him.

“So. I heard your little Crohn’s Disease jokes up there. What, cancer isn’t FUNNY ENOUGH any more? Where are OUR jokes? Pander to us!!!!”

But I didn’t, since each of us sickos needs our time in the spotlight, right?

We made it back home without incident (the gas station was downhill from the mall) and I only had to spend $36 on gas!!

Because I only put in half a tank’s worth. Oy.

Site Changes!!

Well, a few minor ones anyway. I figured I should warn you, since I know there are SO many of you just constantly refreshing the site to look for updates and changes (I’m looking at you, Veronica). I’m finally updating this theme to support WordPress widgets along with a few minor changes here and there I’ve been needing to do for awhile.

Why? Mainly because it’s too hot to move, the fans are on in the bedroom and my laptop is right here. Nothing to do but sweat or update the site. So since I’m a Type A go-getter, I’m doing both at the same time.

Also, I used to have a “Contact Me” page with a form to fill out to send me email for whatever purposes. I’ve taken out the form & the link to it, because the form plugin I was using has a hole that spambots have been taking advantage of for quite awhile. You can still reach me at my usual email address (my first name at this domain) or one of my Moondoggie addresses if you have one of those. Once I have a better contact form, I’ll bring it all back.

Well, back to tinkering I go…

Holy Cow…

I really thought I was a loser and had already missed a day of posting, but it turns out today was actually yesterday’s tomorrow! Whodathunkit.

Of course, that could be from pulling my umpteenth work all-nighter last night. Finally got (most) of the bugs worked out and the Big Project is out the door. Mostly.

I can see all of you, but it’s like through a weird hazy fog…

Since my brain is wandering more than usual, here’s a short list of things you can expect to see in the near-to-not-so-distant future:

  • Brian finally gets his personal life extricated from work.
  • Brian finally gets back to work on Cancer is My Bitch.
  • Night of the Splitting Blogs! Since I’m soooo over the whole cancer thing, I’ll be going back to the ol’ random non-cancery posts. Between that and pushing ahead with the CiMB movement, I’m going to “Splitteth the Blog in Twain” as the kids say. Anything cancery or CiMB-related will still be there, while the old weirdness is safely nestled back in the bosom of moondoggie.com
  • Brian finally gets his photos organized and uses that domain he’s had for them for, like, forever.
  • Brian finally gets the CiMB emails back up and running.
  • Brian finally stops referring to himself in the third person.
  • Flying cars!
  • Trendy new web designs!
  • Occasional frightening personal discoveries of how old I am, when I do the math after hearing things like Billy Joel releasing a special 30th anniversary edition of The Stranger.
  • Purple, purple, purple, as far as the eye can see!

I’m ready for my nap now, Mr. DeMille.

Oh Yeah – My Email Situation

One other thing while I’m at it. My email hasn’t always been the best in the past, what with spam blocking deciding to randomly keep the real emails from me and such, but I haven’t been able to get into any CiMB addresses for the past… two weeks? Three?

We changed our email setup at work from hosting email ourselves to using a hosted Exchange server. While this saves me a lot of headaches with keeping email going for the company, it also had an ugly side effect. I was keeping and storing all of my email in Outlook. Once you set up an Exchange account in Outlook, it apparently doesn’t want to play nice with POP/IMAP accounts. You can get your email from those accounts, but everything I’m reading says Outlook will only send email out through the Exchange account from this point forward. Lovely.

So, since (say it with me) work has been crazy, I haven’t had the time to get all of my non-work email accounts set back up in Thunderbird yet. I know I could create a second profile in Outlook for them, but I like to be able to check all of my accounts through the day, so it’s back to Thunderbird for the personal stuff.

So if you’ve sent me an email to a CiMB address in the past month or so, I’m not ignoring you – I just haven’t read it yet. If you sent me an email before that and haven’t heard from me, there’s a 88% chance it got caught by the spam blockers and I’m not ignoring you. Af dor who the other 12% are, I’ll never tell 😉

I still don’t have the CiMB emails online yet, so if you want to send me an email, you can either send it to a CiMB address and wait or send it to a Moondoggie address if you know one.

I’ll post an update once I have the CiMB email all set up again.

A Quick One While He’s Away

Wow – August was my last post. August? Seriously? Wow.

There have been a lot of reasons for my silence the past few months. The first one being (say it with me gang), work has been crazy. The craziness is finally starting to call down just a little, so I’ll be able to pay a little more attention to you, my adoring public.

The other big reason is, I’ve lost some great friends recently. With each one, I’ve felt that I needed to write one of my novella-length posts in memorial to them both for me and for their families. But with each new loss, that meant I had another novella that I needed to write. I’ve felt more guilty for not paying proper tribute to them than for leaving all of you in the lurch.

With these enormous self-imposed tributes hanging over my head, it didn’t feel right to write about the more trivial things in my life until I paid them each the proper respect. And due to the work craziness, I didn’t have the time available to sit and type away.

Finally, my wife and a bunch of Hodgers made me see the light. Last weekend, we had our big Hodgeapalooza East meetup, where a bunch of us from the Hodge Board got together to eat, drink and be more than merry. It was an awesome weekend keyed off by the fact that two of our more prominent members from Scotland were planning on making the leap over the pond for vacation (no matter what Veronica says). Sensing a once-in-a-lifetime possibility, we had a great turnout of folks with their spouses and/or parents, patients, former patients and caregivers alike.

The most amazing thing is that in this large group of people (30? 40? My math’s been bad lately), there wasn’t a single person who made you think “Oh man, I can’t wait to get aWAY from this fool!” When’s the last time you’ve had that happen in a large gathering? Of course, there’s always the possibility that I was the fool to get away from, but I’m just self-centered enough to convince myself that that is more than likely not the case. Maybe.

Meeting all of these people in person for the first time after going through so much with all of them was… some word that I don’t know. Wherever “amazing” “extraordinary” and the like are on the scale of greatness, pick your own word that’s thirty or forty levels above those. That’s what it was. Being around all of my Hodge family made me realize just how much I’ve missed having them in my life, even when they’re primarily words on a screen. I also realized that not only am I being heard when I speak, but that I’m missed when I’m silent. The realization absolutely floored me. A few people told me how important my jester-like presence was and others told my wife in secret what a difference I was making for them by just yammering away. Okay, they used nicer words, but I have to keep myself grounded, you know.

Seeing that I was making any kind of difference to people out there in the cold cruel world also finally drove home one thought I had been keeping in the back of my brain: The friends I have lost would be SO pissed off to discover that they’re part of the reason I’m no longer out here making people giggle or shake their heads in disbelief at the latest dumb thing I did. I think this is proof positive that there’s no such things as ghosts, because I’m sure they’d all be haunting me by now.

Even though these people were very important to me, I’m going to finally break the barricade by not worrying about long tributes with the perfect thing to say. Sometimes the most perfect tribute is to say that someone has touched your life and will be missed and thought of every day.

Anne-Marie, Sarah, Shannon and Doug – you four are in my heart and mind forevermore. Anne-Marie and Sarah are two of the three people who got me fired up about how folks were treating them and made me decide to make Cancer is My Bitch a Movement. I got a shaky semi-start, but that’s another project crushed by work, another promise broken. I’ll be taking up the CiMB mantle again shortly though, and it’ll be bigger and better than ever. Shannon and Doug I only knew through their spouses, who posted on our Hodge board, but they were just as much family as every other Hodger out there and just as much pain when we lost them. Though I only got to see them through Jesse and Deb’s eyes respectively, it was obvious even secondhand just how strong and loved they both were.

I miss all four of you, though I can’t imagine it’s anything near as much as the people who were actually with you in person feel.

Okay, I’m back to posting now. Now will you guys PLEASE quick making all those spooky noises in the attic?

I’m definitely going to be posting more often now (lofty goal, since my last post was about 10 months ago) and I have Big Plans for CiMB, Moondoggie and my photography, but I’ll slowly reveal those later. I doubt I’ll reach that lofty “post-a-day” goal that I usually set for myself, and I’m tired of breaking promises. So that means, you’re left with “I’ll be posting more frequently,” so suck it up, people.

Ooooo….

I just noticed that my last post was on JUNE 22nd and now I’m finally posting again on AUGUST 22nd. Spooky! Not to mention that my jersey number is 22 as well. Oooooo! And Oingo Boingo is playing too! That doesn’t have anything to do with the number 22 as such, but it’s a spooky sounding song.

I Feel Like a Kid Again…

So here I am, putting off writing another post because I have so much to catch everyone up on, which means that more stuff happens, which means I put off the post longer, which means more stuff happens, which means I start to get a little dizzy after awhile. So now, it’s time to break the cycle. There will be a lot that’s happened which might occur to me to mention down the road aways, or I might never get around to it and have this hidden little dark corner of my life that you don’t know about, filled with forgotten ideas and trips to the ice cream shop.

So, some of the biggest news is that I had chicken pox. Again.

(For my Hodge board friends, this is in reference to the pox I just had, not another, which would be the third time, if it happened).

Yes, I had the pox as a child, but the stem cell transplant sets your immunity back to zero, so you have to get re-immunized for everything. For once, it wasn’t a case of me slacking and putting it off or forgetting. You can’t get re-immunized until you’re one year post-transplant, and I had only recently hit the mark (July 12th, my first re-birthday). So now hopefully next week I’ll get my immunizations. I had to wait to be rid of the pox, then I had to spend a week or so forgetting to call and set up my appointment. D’OH! I would do it this week, but Barb’s volunteering at the Hole in the Wall Gang camp this week, and I want to make sure someone’s around to take me to the hospital if I need it.

Sure, nothing untoward typically happens with immunizations, but I think I’ve shown I’m not quite typical when it comes to the medical world.

Another thing making me feel young and happy with the world is that I bought my first laptop. I’ve had many a desktop computer, but have never really had a reason to get a laptop until now. My previous job with the state gave me a state-issued laptop since I was on the road, but that’s not quite the same as your very own flat-black-cased rectangle of awesomeness.

Of course, me being me, I couldn’t simply get a laptop with nothing special happening. I compared a bunch of stats, features and prices and went with a nifty Lenovo ThinkPad (formerly IBM). I was a little surprised as I watched all of the shipping information that everything was originating in China. Sure, I have a bunch of stuff made there, but usually it’s sent to a US warehouse so it looks like it’s coming from here. Then, about a week after my new baby arrives, I find out that the US Government sent back a shipment of Lenovo computers after discovering Lenovo was owned by the Chinese government. Great. Now the Chinese government is going to know my Minesweeper scores.

Let’s see, in other news, I’ve finally seen a neurologist, and he’s prescribed Neurontin for all of my ails. This is awesome, as it seems to cover all kinds of problems I’ve had, both pre- and post-cancer. I’m in my second (third?) week of it, and so far, so good. Of course, I haven’t done a lot of walking since I started taking the pills, so I don’t know how it’s taking care of the Lhermitte’s issue. Time will tell.

As for now, it’s back to work. There now, that wasn’t so hard, was it?

Muchos Thankos

Hey Everybody

Still busy as always, but I had to get a couple of words out before getting swallowed back up again.

First, thanks to all of you for your care, concern and love over the past few days. If there’s one thing cancer does, it’s surround you with great people. I haven’t had a chance to respond to your comments and emails yet, but I will soon!

Second, speaking of emails, I’ve recently discovered my spamblocker has been going a little nutso on who it decides to block. So, if you sent me an email awhile back and I haven’t responded yet, you might be one of them it caught. Or I might just be a lazy, good-for-nothing slacker. Only time and some digging will tell, but I’ll get back to you soon!

Lastly, the biggest news. I had my PET scan this morning and… it’s clean! There’s a little bit of activity around my appendix, but since I’m not keeling over in agonizing pain, everything seems to be fine. Now we can all get come sleep this weekend 🙂